Support
CKD is a difficult disease to live with and its not uncommon for people living with the condition to need help. Be that emotional, practical, or financial. On this page we're gathering together the resources you may find helpful in the help you can access the help you need to thrive.
Practical Support
CKD makes things hard, below is a list of things we've compiled to ensure that you're getting the help where it's available.
Utilities Suppliers
You should always ensure that your heating and electicity suppliers know if you're disabled, vulnerable, or on dialysis. You will be placed onto a certain list which means they will make sure to contact you prior to any disruption to service and help ensure your electricity is not interupted if you need it for medical care.
Emotional Support
There is emotional support avaiable for people fighting CKD. This isn't something you have to take on alone.
Clinic Counsellors
Many renal clinics have a counsellor or counselling team. These professionals have extensive mental health experience as well as an intimate knowledge of CKD and the challenges which come associated with it.
Chronic Kidney Disease UK on Facebook
There are various Facebook groups available, howevever you should definitely join , it is a huge network of CKD warriors and carers.
KDARS for Kids on Facebook
If you are caring for a child who has CKD then you should consider joining , to discuss supporting children with CKD.
Financial Support
Severe CKD can make it hard to work and reduce household income. You need to be aware of these pieces of information and websites to ensure you're not missing out on support you and your family are entitled to.
Council Tax
If you are using a room in your house to store medical supplies then you may be entitled to a council tax reduction. You should speak with your local council to see if you qualify.
Utility Rates
If you are using rooms in your home for medical treatment (such as dialysis) then you may be entitled to reduced utility rates. You should talk to your electricity, gas, and water suppliers.
Clinic Social Worker
Most clinics have a social worker associated with them. These people have an in depth knowledge of the system as well as a deep understanding of the challenges CKD warriors can face. You should ask to be put in contact with the appropriate social worker to ensure you are not missing out on support which may make your life easier.
Freedom Travel Pass
Many local authorities offer a Freedom Travel Pass for travel for disabled and vulnerable people. You should investigate what is on offer in your area to see if you can get free public transport. This is especially helpful for all those clinic appointments!
Talk to People
You should never be afraid or embaressed to talk to people at an establishment about your personal needs. Many establishments such as cinemas or restaurants may offer discounts or additional support such as seating near exits or bathrooms if they are aware of your situation.
Money Advice Service
has a whole page dedicated to financial support for disabled children. If it's your child rather than you who has CKD you should make sure you read it.
Working Familes
The has a guide for what benefits are available for households which disabled children.
BenefitsAndWork.co.uk
The website www.benefitsandwork.co.uk is very helpful to understand what kind of support and benefits you are entitled to and how to apply for them.
Do you have any information which would help support those living with CKD? Why not Get Involved and share what you know?