Talking About CKD

Talking to people about living with CKD can be especially difficult. Many people do not understand the condition and it can be difficult to explain the impact it has on your life, especially when on dialysis or awaiting transplant.

On this page we're trying to capture various pieces of advice and information sources which may help.





Friends and Family

Children

Employers

Friends and Family

It can be difficult to discuss your condition with your friends and family.

I really need your help to fill in this section. Have you had some conversions with your boss or HR department? Are you a boss or HR professional? Please do get in touch to help me add some good advice here!

Children

It can be difficult enough explaining CKD to an adult however it can be daunting to discuss the compexities with a child. Anita Howell has written a series of books which may be of help.

K Is For Kidney Transplant

Lucy and Jack have a very ill father who needs a Kidney Transplant. This book explores a little of the impact on the lives of the family, in a way designed to be helpful and non-threatening to children who may share a similar experience.

H is for Haemodialysis

Lucy and Jack have a very ill father who needs haemodialysis treatment. This book explores a little of the impact on the lives of the family, in a way designed to be helpful and non-threatening to children who may share a similar experience.

P is for Peritoneal Dialysis

Lucy and Jack have a very ill father who needs Peritoneal Dialysis treatment. This book explores a little of the impact on the lives of the family, in a way designed to be helpful and non-threatening to children who may share a similar experience.

Employers

Severe CKD can make it hard to work and reduce household income.

I really need your help to fill in this section. Have you had some conversions with your boss or HR department? Are you a boss or HR professional? Please do get in touch to help me add some good advice here!

Anything To Add?

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